This is a poem that I wrote in honor of my son.
Raise awareness, but what for?
Congenital Heart Defects, need I say more.
Its endless nights of tears as you wait for him to be born,
Its getting that first glimpse of him as they rush him away
Your heart is so torn.
You wait so long to hold him but you know that when you do,
It will not be the way you want because of all the wires and tubes.
They take him away for surgery you feel so helpless deep inside,
You get on your knees and you pray for God to keep your son alive.
The surgeon comes out to tell you that things didn't go as planned,
Its time for you to see him, Its time to hold his hand.
Your eyes fill up with tears but you know you have to be strong,
You have to let your baby know that he did nothing wrong.
You hold him and you kiss him and tell him its okay,
You tell him that you love him, but understand he can not stay.
He opens his eyes to look at you, you know the time is near,
You suddenly realize that this was your worst fear.
Now fast forward one month later and the pain is still there,
You are trying your hardest to make the world aware.
If you think this will not happen to people just like you,
I can tell you very different. Very sad but very true.
40,000 more children will be born affected this year,
4,000 wont live till their 1st birthday, a parents worst fear.
CHD research is grossly underfunded,
Please help me raise awareness this affects 1 in 100.
As a heart mother we ask for you to spread the word,
All that we ask is for our voices to be heard!